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1.
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Personalized participatory medicine: sharing knowledge and uncertainty
David
Gurwitz,
Jeantine
E
Lunshof
Genome Medicine 2011, 3:69 (27 October 2011)
Abstract | Full text | PDF | PubMed
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Editor’s summary
David Gurwitz and Jeantine Lunshof highlight recent research in Genome Medicine exploring the role of patients and doctors in personalizing breast cancer treatment on the basis of genotype information.
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2.
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No small matter: qualitatively distinct challenges of pediatric genomic studies
Isaac
S
Kohane
Genome Medicine 2011, 3:62 (30 September 2011)
Abstract | Full text | PDF | PubMed
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Editor’s summary
Isaac Kohane muses on the reasons why pediatric genomic studies form only a small fraction of the genomic studies carried out to date, and the challenges involved in overcoming this.
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3.
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Developing and implementing an institute-wide data sharing policy
Stephanie
OM
Dyke,
Tim
JP
Hubbard
Genome Medicine 2011, 3:60 (28 September 2011)
This article is part of a collection on
International data sharing...
Abstract | Full text | PDF | PubMed
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Editor’s summary
Tim Hubbard and Stephanie Dyke from the Wellcome Trust Sanger Institute describe how this leading genomic center devised and implemented its institutional data-sharing policy.
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4.
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Towards a data sharing Code of Conduct for international genomic research
Bartha
Knoppers,
Jennifer
R
Harris,
Anne
Tassé,
Isabelle
Budin-Ljøsne,
Jane
Kaye,
Mylène
Deschênes,
Ma'n
H
Zawati
Genome Medicine 2011, 3:46 (14 July 2011)
This article is part of a collection on
International data sharing...
Abstract | Full text | PDF | PubMed | | F1000 Biology
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Editor’s summary
An international code of conduct for sharing genomic data is proposed, incorporating seven principles: quality, accessibility, responsibility, security, transparency, accountability and integrity.
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5.
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Public perception of stem cell and genomics research
M William
Lensch
Genome Medicine 2011, 3:44 (6 July 2011)
This article is part of a collection on
Focus on stem cells
Abstract | Full text | PDF | PubMed
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Editor’s summary
William Lensch muses on factors influencing the public perception of translational stem cell and genomics research, for which public and patient engagement is increasingly important.
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6.
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Are enrollment sites the key to optimizing participation in genetic studies?
Gert
Helgesson
Genome Medicine 2011, 3:41 (28 June 2011)
Abstract | Full text | PDF | PubMed
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Editor’s summary
Gert Helgesson discusses a recent study by Lanfear and colleagues that identifies enrolment site as the most important factor associated with patient recruitment in a genetic study.
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7.
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Exploring the ELSI universe: critical issues in the evolution of human genomic research
Jill
M
Oliver,
Amy
L
McGuire
Genome Medicine 2011, 3:38 (21 June 2011)
Abstract | Full text | PDF | PubMed
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Editor’s summary
Oliver and McGuire report the highlights of the NHGRI’s Ethical, Legal, and Social Implications Research Program 2011 Congress, ‘Exploring the ELSI Universe’.
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8.
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Factors influencing patient willingness to participate in genetic research after a myocardial infarction
David
E
Lanfear,
Philip
G
Jones,
Sharon
Cresci,
Fengming
Tang,
Saif
S
Rathore,
John
A
Spertus
Genome Medicine 2011, 3:39 (15 June 2011)
Abstract | Full text | PDF | PubMed | Cited on BioMed Central
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Editor’s summary
Patient enrolment rates in genetic research might be more strongly influenced by factors relating to the site of recruitment than patient-level factors, revealed by a survey-based study from TRIUMPH.
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9.
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Genomic and stem cell policy issues: more alike than different?
Mary
A
Majumder
Genome Medicine 2011, 3:35 (7 June 2011)
This article is part of a collection on
Focus on stem cells
Abstract | Full text | PDF | PubMed
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Editor’s summary
Mary Majumder muses on the convergence of stem cell and genomics policy discussions, highlighting common areas of concern such as communication, consent, commercialization and clinical integration.
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10.
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Genome Medicine: past, present and future
Charles
Auffray,
Timothy
Caulfield,
Muin
J
Khoury,
James
R
Lupski,
Matthias
Schwab,
Timothy
Veenstra
Genome Medicine 2011, 3:6 (31 January 2011)
Abstract | Full text | PDF | PubMed
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Editor’s summary
As Genome Medicine reaches its second anniversary, our Section Editors identify the most exciting recent breakthroughs and offer their opinions on what the future of genomic medicine might hold.
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11.
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'Genomic counseling'? Genetic counseling in the genomic era
Angus
Clarke,
Katie
Thirlaway
Genome Medicine 2011, 3:7 (31 January 2011)
Abstract | Full text | PDF | PubMed
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Editor’s summary
As genome sequencing becomes widely available and readily affordable, will genetic counselors embrace the genomics of complex disease as well as the genetics of Mendelian disease?
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