Research highlight
Informed consent in the era of biobanks
Kosair Charities Pediatric Clinical Research Unit, Department of Pediatrics, University of Louisville School of Medicine, Louisville, KY 40202, USA
Genome Medicine 2013, 5:4 doi:10.1186/gm408
Published: 25 January 2013Abstract
Biorepositories collecting human specimens and health information have proliferated in recent years. Efforts to set a range of policies related to biorepositories, including those related to procedures for obtaining informed consent and recontacting participants, have been hindered by a paucity of data on the diverse forms biorepositories take and the variety of institutional settings where they are established. A recent survey demonstrates in detail, for the first time, the diversity of biorepositories in the USA.
See research article: http://genomemedicine.com/content/5/1/3 webcite
